Childhood Cancer Awareness Month

September is Childhood Cancer Awareness Month.

I’ve been avoiding talking about this month because although I used to bring awareness to childhood cancer like it was my second religion, moving and finding my own space in the world has allowed me to distance myself from the advocate side of childhood cancer.
It is not that I do not want to be an advocate for the children fighting this horrific disease, because I am an advocate each and every day. What you have to understand is that sometimes, well actually ALL the time, advocating for the cause that KILLED your brother, is difficult. It hurts. It brings out my post traumatic stress disorder more than any other month.

The honest truth is I don’t want to spend my days focusing on the disease that killed my brother.
But I do want a cure so that no one has to go through what I’ve been through.
It’s a little bit of a give and take situation- I want to give support, but not have it take all my energy as I remember that my brother is dead.

So maybe it’s selfish? But honestly, grief is selfish. I am focusing on MY feelings about losing Cooper, how I view Cooper since he is gone, and what I have lost.

The thing is, childhood cancer still scares me. You would think after losing my brother to the disease I would be able to distance myself. But actually childhood cancer is in the back of my mind constantly. When I am with the babies I watch, the numbers of kids diagnosed each day runs through my head. When I think about my future, having children, the “what if’s” of childhood cancer come creeping up.
And I know your solution as you’re reading this- “Well Kassidy, you can’t live in fear” – You’re right, but you’ve also probably never seen a pediatric unit on Christmas morning, a child get poked with a needle larger than your hand, or watch that same child die.

Grief is hard.


September is hard- because it reminds me of the almost 4 years of absolute HELL that my family and I lived through. The funny thing is I cry more tears wishing he was still in the hospital, rather than crying tears cause he’s dead. My selfish heart wants him here, but my realistic brain knows he would not be the Cooper he was before he was sick.

So, instead of being an advocate for the children currently fighting childhood cancer, the children that are about to receive that diagnosis, or the children who are about to die from childhood cancer.
I wish to be an advocate for all of you who are not going to be affected by childhood cancer, who are not going to hear the words “Your son has Leukemia” or “Your daughter has a Glioblastoma brain tumor.”
I wish to be an advocate for all the people who will not hear those words because I want to remind you of the things that you are privileged to do with your children, siblings, mothers, and fathers each day that we who are grieving the loss of someone we love, cannot do.

You don’t have to say ‘I love you’, but you get too.
You don’t have to give your child a hug, but you get too.
You don’t have to put your phone down to listen to your babies stories, but you get too.
You don’t have to tickle your little one’s back, but you get too.
You don’t have to take them to all the sports and dance classes they want to go too, but you get too.
You don’t have to spend time taking them to the park or on vacation, but you get too.
You don’t have to kiss them goodnight even when they made you crazy that night, but you get too.
You don’t have to feel blessed by your healthy family every day, but you get too.

You see where I am going with this.
Every thing is a choice- you don’t have to do anything in this world, you GET to do every thing in this world.
Including loving your people.

Friends, Love them well because tomorrow is not promised.
As today ends Childhood Cancer Awareness Month- tomorrow marks the 2nd anniversary of the Las Vegas Mass Shooting, where my sister and I ran for our lives.
I cannot imagine what tomorrow would look like if my parents went from losing one child, to three children in the matter of seconds.
I know for a fact my brother spared our lives, I know he was there holding Julia and I as we ran.

Grief is hard.

It comes in many forms, alive or dead.
So today, tomorrow, and always- love your people well because today you GET too.
Tomorrow you might not.

2 Comments

  1. October 2, 2019 / 4:58 am

    My heart goes out to you, Kassidy. Thank you for sharing this! I admire your strength and it certainly is such a good reminder to cherish each day. It’s so important for people to know about childhood cancer and hopefully someday soon there will be an easy answer to rid kids of this awful disease.
    Caitlin

    • Kassidyowen
      Author
      October 3, 2019 / 5:58 pm

      My prayers are that a cure happens soon! But until then we fight for those who can no longer fight. Thank you for reading!

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